The EDS Things You'd Miss Even If We Hang Out [CC]

Here on the internet, there is a lot about the lives of chronically ill people that viewers don't know about, but today I wanted to talk about the things even the people around me miss, don't suspect about my experience with chronic illness because it rarely ever makes itself known on my face or visibly noticeable on my body. This is not even ALL of it but I wanted to share the EDS thing I feel a lot of people miss even when we share space together IRL.

[Insert apology for not uploading for so long here; a lots been going on, I've been sick and lacking the energy to produce, I felt lots of pressure to produce "perfect" content, and so screw it! Here we are!]

Timestamps:
1:29 Arms + Hands
4:00 Legs
8:12 Dysautonomia
9:59 Fatigue
11:23 Being visibly and invisibly disabled


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CHANNEL DESCRIPTION

Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.

disability,eds,ehlers danlos syndrome,ehlers danlos,ehlers danlos syndrome hypermobility,pots,dysautonomia,disability awareness,invisible disability,